Biogen
Head of Patient Engagement, Rare Disease
Research Triangle Park, NC, USA · Senior
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About the role
- As a mid-sized biotechnology company, we provide the stability and resources of a well-established business while fostering an environment where individual contributions make a significant impact.
- Our team encompasses some of the most talented and passionate achievers who have unparalleled opportunities for learning, growth, and expanding their skills.
- Biogen is an E-Verify Employer in the United States.
Responsibilities
- Lead the Rare Disease Patient Engagement function, overseeing patient experience, specialty pharmacy operations, hub operations, and patient support programs.
- Develop and execute strategies that improve patient access, therapy initiation, adherence, and long-term treatment outcomes.
- Lead specialty pharmacy partnerships and patient support services, including adherence, lab monitoring, and patient assistance programs.
- Manage external vendors and service partners to ensure operational excellence, compliance, and high-quality patient experiences.
- Drive continuous improvement through data, patient insights, technology, and innovative support models.
- This role ensures patients can access, start, and remain on therapy through innovative, patient-centered solutions that support both patient outcomes and business objectives.
- The role also oversees key vendor and specialty pharmacy partnerships, drives operational excellence, and leverages data and insights to continuously improve program performance.
Requirements
- 10+ years of experience leading patient support services, patient access programs, specialty pharmacy operations, hub services, or related commercial functions.
- Experience supporting rare disease, specialty therapeutics, or other high-touch patient populations.
- Expertise in specialty pharmacy strategy, hub operations, vendor management, service delivery, and patient engagement program management.
- Strategic thinker with the ability to translate data and insights into actionable business recommendations.
- Required Experience
- 12+ years of experience in the pharmaceutical, biotechnology, healthcare services, or specialty pharmacy industry.
- Strong understanding of complex patient journeys, reimbursement, access, affordability, specialty pharmacy distribution, and patient support operations.
- Proven experience designing, implementing, and optimizing patient support programs for both launch and established products.
- Demonstrated success leading cross-functional initiatives within highly matrixed organizations.
- Strong business acumen, including experience managing budgets, program investments, and performance metrics.
- Leadership Competencies
- Proven ability to influence without direct authority and drive alignment across diverse stakeholders.
- Strong executive presence with exceptional communication and relationship-building skills.
Nice to have
- Experience partnering with customer experience, digital transformation, and analytics teams.
- Knowledge of specialty distribution networks, patient services technology platforms, and inventory management.
- Financial management and P&L experience preferred.
- Willingness to travel as business needs require.
- Job Level: Management
- Additional Information
- The base compensation range for this role is: $206,000.00-$283,250.00
- including, but not limited to:
Compensation
- Tuition reimbursement of up to $10,000 per calendar year
Benefits
- Medical, Dental, Vision, & Life insurances
- Paid Maternity and Parental Leave benefit
- Partner with Commercial, Market Access, Medical, Digital, Analytics, Legal, and Compliance teams to deliver integrated patient engagement solutions.
- Base salary offered is determined through an analytical approach utilizing a combination of factors including, but not limited to, relevant skills & experience, job location, and internal equity.
Company info
- We are a global team with a commitment to excellence, and a pioneering spirit.
- Up to 12 company paid holidays + 3 paid days off for Personal Significance
- 401(k) program participation with company matched contributions
This listing is sourced directly from Biogen's careers page and normalized into a canonical job model.