Dyne Therapeutics
Director, Patient Advocacy and Operations
Waltham, MA · Director
No sponsorship$196k-$240kDetected 21 days ago
Public HealthPatient CareAnimal StudiesCommunicationCollaborationPublic SpeakingOrganizational Skills
About the role
- Dyne Therapeutics is focused on delivering functional improvement for people living with genetically driven neuromuscular diseases.
- The company is advancing clinical programs for Duchenne muscular dystrophy (DMD) and myotonic dystrophy type 1 (DM1) as well as a preclinical programs for facioscapulohumeral muscular dystrophy (FSHD) and Pompe disease.
- Learn more at https://www.dyne-tx.com/, and follow us on X, LinkedIn and Facebook.
Responsibilities
- In collaboration with the VP of Patient Advocacy, partner closely with advocacy leaders and the broader patient community to advance key initiatives, including but not limited to:
- Partner with the VP of Patient Advocacy to plan and execute conference and patient advocacy organization (PAO) engagement activities:
- Serve as the operational lead for the Patient Advocacy Grants, Sponsorships & Donations committee, including budget oversight and end- to- end management of the submission process, such as coordinating with requestors, ensuring proper documentation, and overseeing contracting and payment workflows.
Requirements
- 8+ years of experience in patient advocacy in the biotech/pharmaceutical industry, preferably within a clinical stage biotechnology company.
- Strong understanding of the Patient-Focused Drug Development (PFDD).
- Experience managing budgets, teams, and compliance sensitive partnerships within a regulated environment.
- Proven experience partnering with clinical teams on trial awareness and recruitment efforts.
- Broad knowledge of the biopharma landscape and a solid working understanding of the drug development process.
- Strong interpersonal skills with the ability to influence without authority and work effectively across diverse functions and personalities.
- Compassionate, patient centered mindset, and a high degree of personal integrity.
- Experience with Patient Advocacy sponsorship contracting processes.
- Overnight travel will be required
Nice to have
- Bilingual fluency in Spanish is a plus.
Compensation
- $196,000 - $240,000 USD
Benefits
- Collaborating with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate the patient voice into R&D, clinical trial design, and commercialization efforts.
- Supporting Dyne's presence at patient advocacy and select scientific/medical conferences including event planning, session development, patient-facing materials, symposia, presentations, and on-site event execution.
Company info
- We are developing therapeutics that target muscle and the central nervous system (CNS) to address the root cause of disease.
Visa & Work Authorization
- Experience with Patient Advocacy sponsorship contracting processes.
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This listing is sourced directly from Dyne Therapeutics's careers page and normalized into a canonical job model.